In the beginning

How sad is it to know that no matter what you do to improve your life, you will only be able to ‘deal’, never  overcome, is a process beyond your grasp. To know that your hands are handcuffed and you are destined to give in. no hope.

Sad, sad,sad.

How did Jon Lester do it? How did Lance Armstrong do it?…is their a secret? The only secret is desire….but when your desire takes four steps back after you have marched it two steps ahead the day before, exasperation is an everday emotion……an almost hourly emotion.

No clue I had this disease. Pretty sure my parents really had no idea either. Father was diagnosed with MS which can easily be confused with Spinal Cerrebullum Degeneration-but MS(as far as I know is not carried on from generation to generation) so they didn’t look.
No symptons here untill about 38,44 now. Played lots of B-ball, lots of soccer, baseball…many very intense physical activities, even a veteran of the Gulf War thru the USAF. Then the world came crashing down…and it came hard

Have had a list of reasons I had to see the doc during my younger years,the usual shit.Sprains, aches, nausea, whatever……but no had a clue. No warning, always a clean bill of health. Healthier than most, where were the USAF professionals, the ER docs, the specailists….where were they?  All ran tests, they all took blood…..no one had a clue.

Why?
Before I go any further let me explain what the disease is:
WebMD-Friedreich’s Ataxia is a genetic, progressive, neurologic movement disorder that typically becomes apparent before adolescence. Initial symptoms may include unsteady posture, frequent falling, and progressive difficulties walking due to an impaired ability to coordinate voluntary movements (ataxia). Affected individuals may also develop abnormalities of certain reflexes; characteristic foot deformities; increasing incoordination of the arms and hands; slurred speech (dysarthria); and rapid, involuntary eye movements (nystagmus). Friedreich’s Ataxia may also be associated with cardiomyopathy, a disease of cardiac muscle that may be characterized by shortness of breath upon exertion (dyspnea), chest pain, and irregularities in heart rhythm (cardiac arrythmias). Some affected individuals may also develop diabetes mellitus, a condition in which there is insufficient secretion of the hormone insulin. Primary symptoms may include abnormally increased thirst and urination (polydipsia and polyuria), weight loss, lack of appetite, fatigue, and blurred vision.

Now this definition is slightly confusing because of the first statement:

“Friedreich’s Ataxia is a genetic, progressive, neurologic movement disorder that typically becomes apparent before adolescence.”

I’m am not saying this statement is wrong…as I stated before the disease really didn’t take affect untill 38 years of age…..again the question, Didn’t anyone have a clue?

“Treatments are generally limited to softening symptoms, not the disease itself. The condition can be irreversible. A person with this disease will usually end up needing to use a wheelchair, and eventually they may need assistance to perform daily(WIKIPEDIA NOVEMBER 17, 2006)

Guess they haven’t met Scott Front

I was told I would be wheelchair bound within days when I went to a Neurosurgeon approximately 8 years ago. This was unacceptable to me so I spend three days a week at the gym(about 2 hours per-working all muscle groups-not just the legs),drink a lot of protein, take vitmins(supplements), smoke some pot and I’m proud to say walk with a cane! Tomorrow I’ll look for something else to try and improve…and the next day and the next day….

Working out? Now I’m not a doctor and I’m not advising you what to do but I will state this : Working out has not only helped me physically all the way around but it does a number of other things as well.
Do I feel stressed? Absolutely not!…one of the most content people you will ever meet And that is crucial!! Remember I live with my handicapped brother(wheelchair for 15 years) and my father(wheelchair-20 years) so stress is so my strength and ability to walk are used everxday. I will lay out my routine at a later time, this is just to let you know benefits I see for me.

Gets me out of the house. Allows me to focus , to think of something else…..to stay in this house day after day and listen to my DAD YELL “SHIT” OR ” Damn”or “asshole ” every few minutes is wicked taxing!!! See he attempts to do WAY to much so an accident is gonna happen. Maybe the plate he just took out the Microwave is too hot, so its been dropped. Mabe he leans over to far in his chair and can’t get up. Maybe he gets stuck in the icy driveway while he tries to shovel(yes it happens).
Its always something or someone elses fault. If he would chill and ask others for help others everything would be cool.

Gives me a social atomsphere there. Everybody knows me and I know everybody else! The manager says it reminds her of that show “Cheers”"….sometimes you wanna go where everybody knows your name…” I have been going there a minium of three days a week for 3 years and cannot ever picture my life without the Gym! Write more on that later but wanted to give a heads up about how important it is to me.

mmmmmmm..well thats where I am in a nutshell. Wil tell you about the pot and why,will tell you what I was and what I want to be, will talk on baseball, will talk, sex,drugs, and of course ROCK N’ROLL!!!Let the stories commence

Stay tuned….same  bat time same bat channel!